Why Don’t Most Cases of Lyme Disease Get Reported?

Support groups have helped thousands of people with Lyme and Lyme-like illnesses in central, southern, and western states.  Only a very few of these cases were reported.


1. Many doctors, unaware that it is in all 50 states, don’t suspect it.

2. Diagnosis is difficult:

a. Symptoms resemble other diseases.

b.Tests are not very sensitive.

c. Many, perhaps most, cases don’t get diagnosed.

3. Most diagnosed cases don’t meet reporting criteria.  The CDC revised their reporting criteria in 1996, 2008, and 2011 so that fewer cases could be reported.

4. Most cases that do meet reporting criteria don’t get reported.  The CDC estimates that only about 10% of cases that meet reporting criteria are actually getting reported.

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